I’m just reaching out in solidarity with all of you. My daughter was diagnosed three years ago and my wife and I are completely exhausted, overwhelmed, and filled with constant worry. It never gets better.
I hate this disease so much. We have a family of five and it feels like each of us has a 50 lb weight on our backs. It doesn’t stop us from doing anything. But it makes everything suck more than it would with a healthy pancreas. And as difficult as it is to be the parent of a kid with T1D, I can’t ever let myself feel that too much because I’m always reminded that this is the rest of my daughter’s life. That both terrifies and saddens me. And it’s frustrating because guilt won’t allow me to feel my own feelings too much.
I’m in constant admiration of all of you. The rest of the world doesn’t understand how much more difficult it is for diabetics to do normal things like go to school and have a job. I wish I could snap my finger Thanos style and make diabetes go away for my kid and for all of you. I know you do too.
I have only one request. If you were diagnosed as a kid and became frustrated with your parents’ holding you too close or constantly monitoring you, please forgive them. This is the hardest thing we’ll ever have to deal with. And we can’t protect you or make you better, no matter how much our instincts as parents tell us that’s what we should be doing.
Thanks for reading. I hope this doesn’t bring anyone down. Not my intent. Be well.
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