I got diagnosed as type 1 at 24, after being super thirsty and losing 10kg pretty fast. Had the c peptide test and tested positive for all type 1 antibodies. My a1c at diagnosis was 13% and fasting blood sugar was 20mmol before I was put on insulin. My basal was 6units of Lantus and starting bolus was 3 units of Novo Rapid. After the first month my carb ratio was 1:20, which then became 1:30, then 1:50 within 5 months. My a1c after 3 months dropped to 6.8. After 6 months of diagnosis I started going low often and was told to stop using insulin with meals. I kept going low so my basal was slowly dropped then stopped completely 9 months after diagnosis. My a1c at this time was 4.8.
Since this time (1.5 years ago) I've been to the endo twice. My a1c has been between 4.6-4.8 each time and I'm still using 0 insulin. I've been tested for the antibodies again 2 more times and they were still coming back positive. I have my next appointment in a few weeks which will be the first time in 8months that I've been to the endo and I'll be getting the results of the antibody tests again. My drs weren't really sure if I'm having an odd honeymoon or if something else triggered the antibodies so that's what this appointment will be about.
Has anyone else had a similar experience of being off insulin temporarily or false positive for type 1?
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