This is really just a rant as I need to get some of this stuff out my head. I know there's a whole lot I could be doing better but fixing that is for after the ranting. This will probably just be a bunch of rambling.
Warning: Turns out there's some swearing in here. >_>
Let's see... I quit my job back in April right before all this COVID crap really hit the US hard. Great timing, eh? I used a month of COBRA to cover the insurance gap and fill up on diabetic supplies. I was lucky enough to get a job with an old company and that started in May. Other than orientation, it's all working from home. Peachy.
Come July, it's time to reorder insulin and what not. I'd gained some weight. Who hasn't? It's tough to exercise when you can't go anywhere and I don't even have the benefit of random exercise like going to office, grocery shopping, doing random outtings to stores and whatever. My diet is shit as I'm basically getting takeout every day and wholly hell is all of it carbs. On top of that, my apartment is basically it's own hazardous zone at this point as I'm horribly depressed and apparently can't clean shit. My microwave is literally the cleanest thing in the apartment and the only thing I cook with.
So, anyways, more insulin. I call my doctor and get a new prescription for 150 u/day. This is what my pump said I was taking so that's the number, right? I forgot about spillages associated with all of this and forgot I'm supposed to know the future.
(Side rant: It was at this point that my insulin usage had increased so much that I had to turn off Control IQ as it has a maximum basal rate of 3 u/hr. At the time of writing, I'm up to 5 u/hr. Fun fact: For some god forsaken reason, you lose Basal IQ when upgrading to Control IQ. That means that I don't have any kind of auto-suspend-on-low functionality and haven't had it for months. That's been fun.)
Cue me realizing I'm going to run out of insulin like 2 weeks before they'll let me refill. Okay, no problem, let's contact my endo's office and get a new prescription. Got shunted to voicemail, leave a voicemail. Don't hear back the next day, don't see any new prescriptions pop up. Call endo, get shunted to voicemail, leave a voicemail. Don't hear anything back for another 2 days. "We sent in your new prescription with 1 refill contingent on doing bloodwork at your next appointment, etc."
Great! Wait 24 hours. Silence from my pharmacy. No email. Nothing on the website. No calls. Try to call them, on hold for 1 hour before I give up. Try to call them again, on hold for 4 hours before I give up. Try to message them on the site. Wait 24 hours. Nothing still.
At this point, I've plumb run out of insulin. I went to Walmart, picked up 3 vials of Novolin R, got bullied by the pharmacist who ... I don't fucking know what that was about. It doesn't require a prescription. You have it. Just sell it to me. Throw that in my pump after changing some settings. Yay, I get to live for a little more.
Holy shit is regular insulin bad. If I didn't have a CGM, I'm pretty sure I'd be in a coma by now. Jesus. Remember that side/fun note about not being able to use Control IQ? Yeah...
Managed to call the pharmacy at 10PM after realizing the support line is 24 hours. "The order isn't scheduled to go out into the 21st. Why do you need it sooner than that." BITCH I NEED IT TO LIVE. Get transferred. "Our prescription system is under maintenance right now and we can't access any customer information. Please call back after 5AM." Fuck.
Call back at 7AM. Not allowed a refill until the 21st despite having a new prescription. WHAT. Oh, okay, my endo wrote the prescription for the same dosage so insurance is like "nope, no way they could possibly need more insulin."
Oh, look, my endo's office is open now so I can go call them and leave another voicemail! Wish me luck!
Why does this shit have to be so hard?
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